I fall backwards with no explanation other than car exhaust in my air space, with some injuries as a result. There are 37 known isotopes isotopesA form of an element that has the same number of protons but a different number of neutrons in the nucleus, giving it a different atomic mass. Its the working hard for absolutely nothing that I dont want to do! The most common side effect of radioactive iodine treatment immediately after it's been administered is that you will feel very tired for the first few days after the treatment. I have been tested and my doctor says that Im right where I need to be. Claim Your Free eBook Now. I had RAI treatment nearly 2 years ago, and deeply regret it. The relationship between your thyroid to your hair growth aside, iodine . and I'm proud to say that over 80,000+ people have used them over the last 6 years. The entire goal of the procedure is to put radioactive iodine molecules into your body with the sole purpose of destroying your thyroid gland. I am on NP with an additional Synthroid to balance me out. Protecting Your Family After Radioactive Iodine Treatment. I will know more in a few days when he has all the pathology reports back etc. Free T4. The good news is that this radioactivity does fade over a short period of time (usually 5 to 7 days) but the bad news is that you need to stay under certain precautions during this time. To lighten hair dyed that is too dark with vitamin c powder, mix together 1 tablespoon of vitamin c powder with 1/2 cup of water. 12 noon, lunch and VS with glucose readings. It turns out, which should come as no surprise, that medications are not a 100% complete substitute for the activity that your thyroid gland does on a day-to-day basis. Then too, my annual eye exam with dilation is due now, that appointment is upcoming, as well as further dental with my regular dentist now that I have the one impacted and rotted tooth extracted. I am worried the medication or added T3 (Armour)is making that happen and it could be hurting my heart. Iodine (chemical symbol I) is a chemical element. After your treatment, you won't be able to go home using public transportation, such as buses, the subway, trains, or a plane. If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. All my life my hair was thin and fine. My exercise routine has been reduced because of back injuries and arthritis. Men should sit down when urinating. Anecdotally, youve probably already heard stories about people gaining weight after their procedure. I am concerned. It seems though that people who are already overweight BEFORE their procedure probably have the worst outcome and tend to gain the most weight compared to others. Will it . She is the author of "The Thyroid Diet Revolution. I am considering following up with the endocrinologist in the morning. Not everyone gains weight after RAI, if thats what you mean by treatment but if you are going to, it will start within 4-6 weeks of the procedure and may continue for several months. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. This was published id a study by dr brunelli fro. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. Please help! My eyes improved for a while but now seem to be getting worse. My blood work prior was Theres no way to tell if your eye symptoms are related to your thyroid without first trying to optimize your TSH (which should be your next step). But my surgeon palpated three nodules and pathology report confirmed PTC, so a completion surgery was scheduled and performed this past April, and that lobe also showed cancer nodules on pathology report as well as some tissue purposely left because some cancer nodules had invaded my vocal chords. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. Thank Sharon. Therefore, it may be found in varying amounts in all food and beverages. Swelling and tenderness of the salivary glands. Then I get up at 7AM and during that first hour get my daily weight after I void and empty my bladder, and strip down for a true body weight. Radioactive iodine is a procedure that is often used to treat hyperthyroidism. I have tried everything and it is frustrating. I dont want radiation therapy especially as she hasnt even told me what caused this. Anna Thomas. Thanks. Your hair should be colored before a BK treatment. Even at this age, I still want to feel and look pretty. 1. I am in the military, stationed in Fl. Since then, each year various GPs have looked at my thyroid function test results, focused solely on the low TSH reading and have now reduced my levothyroxine down to 100 despite my arguments to the contrary. You should have your thyroid lab levels tested to see if you need medication. Add black tea to the darker colors above to help the color last longer. Instead of working to actively reduce thyroid function in your body (which is what the treatment for hyperthyroidism is), you may want to start focusing on how to optimize what little thyroid function you have left. Although caffeine-containing shampoos are popular they are not useful. It is a good idea to increase your fluid intake after an imaging exam involving an iodine-based contrast material to help remove the contrast material from your body. Credit: iStock. Can You Get Everything Your Thyroid Needs From Food? and my being a nurse, Im researching and learning all I can. This is usually put into pill form for patients to ingest. So, if papillary or follicular thyroid cancer has spread to any other part of the body, we can still use this therapy to find and destroy it. Improving gut function can be done through diet and supplements. Because your thyroid gland concentrates and stores iodine in your body. Here are 4 ways you can get more help right now: #1. I had my RAI 3weeks ago and they did not gave me a pros and con what to expect after. 2022 Dr. Westin Childs | Thyroid & Health Supplements That Work Built withGeneratePress and powered by Kinsta. What can I be looking at regarding weight gain. These symptoms are not caused by the procedure itself but rather a consequence of the damage of the thyroid gland and the inability of your body to produce thyroid hormone. 8PM HS snack and VS and glucose readings. I am a female, and Im 60 years old, soon to be 61. Another doctor wants my temp and glucose readings, temp shes ok with once or twice during the day. Cats can receive a second treatment, if necessary. How will I know if I am producing my own thyroxine? Whatever touches your skin will pick up a small amount of radiation. Total testosterone was :10.47(7.60-32) low Answer (1 of 9): I have direct experience with this question because my wife had radioactive iodine treatment for her thyroid cancer and she was supposed to stay away from me and our parrots for 3 days until the radioactive iodine dissipated from her system. I am getting ready to have thyroid removed due to cancer. Doctors made me think it was my only option at the time. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything. It doesn't matter where those cancerous cells might be. One doctor wants a monitor of pulse five times daily, hes concerned about para thyroid damage. Hives. I tend to have a high heart rate when I exercise it goes up to 130 righ away then may go as high as 174 at harder workouts. I know some people contribute this The list includes optimal ranges, normal ranges, and the complete list of tests you need to diagnose and manage thyroid disease correctly! General Information. The radioactive iodine uptake test (RAIU) is also known as a thyroid uptake. fresh bread. Will you be able to maintain your current weight? I have since been on a roller coaster ride with the levels fluctuating up and down and not sure why. Free T3. As so many of you, I too was very unaware of the many causes of having your thyroid removed can have on a person, or the underlying affects that can be caused by the I-131 RAI "therapeutic" radioactive iodine treatment. It can be an iodine-based material, barium-s ulfate, gadolinium, or saline and air mixture that can be swallowed or injected intravenously. Now I cant stand the heat and I used to go to the beach all the time. What will you really expect after your RAI, side effects It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). With a regime as this, its no wonder for depression, no sleep! Im 60 years old, so its not like Ive got a full life ahead of me, not a big deal. For most people, this means that you can expect to live at 80-90% of your normal. After you get the dose, the scanner checks your entire body for signs of radioactivity. If your head and scalp are exposed to radiation (usually after a brain tumor surgery), it can affect the hair follicles and cause hair loss while the rest of the body may be unaffected. If radioactive iodine treatment (RAI) is recommended as part of your treatment for Graves disease, hyperthyroidism, or thyroid cancer, you will most likely be given it as an outpatient. Radioiodine treatment avoids surgery, anesthesia, and anti-thyroid drugs. Its not vain at all! The majority of radioactive iodine, therefore, will be absorbed by any remaining thyroid cells. Mary Shomon is a writer and hormonal health and thyroid advocate. My endo physician would not increase the dosage so I went to my G.P. https://www.restartmed.com/weight-loss-after-thyroid-removal/, Hello I had the rai treatment 33 years ago and I have never felt good since then , more recent they ultrasound my thyroid gland and the lady who did the ultrasound kinda freaked out saying to me where is your thyroid gland hat did they do it it, I was in the hospital with pancreatitisNo dr has told me there could be a reason for getting pancreatitis with hypothyroid and how can my blood tests say my thyroid is producing hormones and is low which means high . You can obviously survive after RAI (otherwise they wouldnt do the procedure) but I want to teach you how to thrive afterward. Is it 10 days? LH :4.12(1.70-8.60) Rinse your hair with warm water and shampoo it. Prior to my RAI my level was .03. It is what it is. Its definitely possible it just takes more time and the weight loss is slower. I am on my own taking more precautions, and going at this as a Haz Mat Tech, Yes, Im that too, as I am a volunteer fire fighter/EMT/ and wear many other hats as well as Haz Mat Tech and am certified in Decon operations. Once your thyroid is destroyed, it will no longer work exactly as it used to. If a person with a health thyroid intakes the I131, it will damage their . Homocysteine down to 11.5, methlymalonic acid down to 257. In the mean time, Im feeling worse about myself than with this original post. Ultrasound can also be performed if . As a result, it isnt uncommon for some patients to suffer from persistent symptoms of hypothyroidism (meaning that they dont have enough thyroid hormone). This can delay subsequent use of radioactive iodine (RAI) therapy because the iodine can compete for uptake. Will destroying your thyroid gland have long-term consequences? Catnip works for lighter colors. Pls.can u explain about this. Call (800) 542-1123 or visit www.labtechinc.com to learn more about protecting your home against radioactive iodine. Rarely, people can feel pain in their neck. Hi, I feel horrible. I had RAI treatment done 10 years ago. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. They said it was Will you be able to lead a normal life? #2. Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ The thyroid gland is the only tissue in the body that takes up and holds onto iodine. Radioactive iodine is absorbed and concentrated by the thyroid gland. Receiving intravenous iodinated contrast (iodine "dye") may also cause hyperthyroidism. The iodine is taken into the thyroid gland and incorporated into thyroxine. I have Hypothyroid Mom readers struggling with hypothyroidism now since treatment for their Graves' with radioactive iodine (RAI) or thyroidectomy. A thyroid scan is a type of nuclear medicine imaging. You wont be able to sleep next to people, go to work, prepare food for others, go into public places, fly on an airplane, ride a bus, share utensils with others, sit on a public toilet, and so on for about 1 week (3). My question is what if I do radiation while my thyroid isnt hyperactive? I HAD MY RAI LAST SEPTEMBER 12, NOW IM ALREADY 2 MONTHS AFYER MY RAI. I had radiation iodine therapy in late September. Or longer 5. This is my story. I had a lot of hair loss right after my thyroidectomy. My weight seems to be of no concern to him as long as my blood work looks okay. Created for people with ongoing healthcare needs but benefits everyone. Your doctor should monitor you for symptoms of hypothyroidism after RAI treatment. If so, what are you struggling with? OR IT WILL BE GIVE ME PROBLEM? Importance: Patients who undergo radiographic studies with contrast receive an enormous bolus of iodine. If your overactive thyroid symptoms persist 6 months after treatment, you may need a second dose. of iodine, and only one is not radioactive (Iodine-127). ", Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. I had RAI 20 plus years, I am 56 and my numbers are good. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. We know that that still leaves lots of options if your heart isn't already set on a color. So far I feel strong and as I did before. It was not and I have been searching for help ever since. Most people who get radioactive iodine treatment do so because they are considered to be hyperthyroid (sometimes people get RAI for thyroid cancer (5) but most people get it for hyperthyroidism). I was normal weight and now frustrated to be 30 pounds overweight. The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ Thank you and God bless! I keep telling them that I dont feel so good flaking nails, dry skin, fatigue, weight-loss resistant with brain fog. But it does increase your risk of weight gain if you have the procedure by about 2 to 3 times. Does Taking Thyroid Medication Cause High Blood Pressure (Hypertension)? The average thyroid patient gains about 15 to 20 pounds after RAI/thyroidectomy and this weight is more pronounced if the thyroid patient was overweight prior to the procedure. So I stopped going. No one said it could be from my low thyroid, but I found clinical trials that mentioned it was rare but could affect eyes and should be treated aggressively. This keeps the radioactivity from destroying other cells in your body and only allows for the destruction of your thyroid gland. These are just a few of the questions that I want to answer in this article. This usually means that you are being overtreated and are being put into a state of hypothyroidism. #3. Along with a pain and numbness in my right hand. Many thanks in advance for any help. And in addition to going back to surgery for the left lobectomy, to expect to be on the Radioactive Iodine therapy. Thank you, {{form.email}}, for signing up. Read our, An Overview of Thyroid Disease Treatments, The Low-Iodine Diet for Radioactive Iodine Treatment, Society of Nuclear Medicine Procedure Guidelines (PDF), Practice Recommendations of the American Thyroid Association (PDF). You wouldnt want to use a steroid on it unless you know what it is. There is a paucity of literature on the minimum interval between contrast administration and RAI therapy. 5 years ago I had intense radiation treatment for breast cancer and was told to avoid X-Rays, Cat Scan, unless absolutely necessary. Difficulty breathing. The following recommendations will give you an idea of precautions to take to avoid exposing other people (as well as pets) to iodine 131, which may be present in bodily fluids or occur as a result of close contact. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. Redness, tired eyes, they were seeing double, and not accommodating going from reading to distance. Hi doc! I dont have another drs appointment till after the holidays. Many clinical studies have also confirmed that weight gain after RAI is a real risk. Restoring your metabolism will have more to do with your dose of thyroid medication than anything else. #1. https://www.ncbi.nlm.nih.gov/pubmed/22914564, #2. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5413587/, #3. https://www.liebertpub.com/doi/abs/10.1089/thy.2010.0090, #4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5455212/, #5. https://www.ncbi.nlm.nih.gov/pubmed/28545679, #6. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3336179/, #7. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4851449/, #8. https://www.ncbi.nlm.nih.gov/pubmed/18832945. And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. I have been asked to transport a friend who is having Radioactive Iodine treatment both the day of and a couple days later for her followup scan. Iodine is used in the care and feeding of animals and as a stabilizer and/or safety element in food processing. So, when I get up at Midnight unless I stay up that late, I get a full set of VS plus my glucose readings, and take my Levothyroxine. I am now 54 years old. Fifteen years ago diagnosed with hyperthyroidism and had RAI. Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). FSH was :4.33(1.50-12.40) One thing I didnt see in your article is the correlation of Thyroid to Diabetes and CTS. They are planning radioactive iodine in the future. can i color my hair after radioactive iodinesvetlana invitational 2022 Consultation Request a Free Consultation Now. Ive certainly seen some patients reduce their total dose of thyroid medication by undergoing some natural therapies to help restore thyroid function after RAI (but the number of patients Ive seen in this category is somewhat limited). I was exercising and my nutrition intake is organic most fruits, vegetables, meets grass fed etc. Flush the toilet two times after each use. Lowered heart rate. My entire life has been turned upside down. Is there anything I can do to protect myself as I am driving her. Since then I have suffered most every day with severe chemical sensitivity. Gadolinium-based Contrast Material. Radioactive iodine can also show whether cancer has spread beyond the thyroid. A swollen or tender neck and feeling flushed. A high uptake of radioactive iodine suggests Graves' disease. They do this by either stopping your oral thyroid medication or giving you thyrogen. One of the more surprising aspects of getting RAI done is the fact that you are quite literally radioactive after your procedure. A second set of scans will be taken after the contrast dye has been given. Im a nurse, and tend to over think things. It is a measurement of thyroid function, but does not involve imaging. Then, also there is the womens health portion of all this, and so I had my annual, and a polyp was found on my cervix, it was a rather large one, and thankfully no cancer cells on that, my PAP Im waiting for results. Hyperthyroid Symptoms Checklist Do you Have an Overactive Thyroid? Be particularly careful around infants and children, who are especially at risk for exposure complications. You can drive yourself, have someone pick you up and take you home, or take a taxi or private car. If you have heard of this before is there a natural vitamin or something that will help me control the heat in my body? I ordered the dutch test so have those results but I cannot read it and I am not sure what it all means. The problem is that once you destroy your thyroid gland you are no longer considered to be hyperthyroid. I moved doctors in 2016 and my new GP immediately put my dosage down to 125 despite my protestations that I felt absolutely fine on 150. Center for Hormonal Health and Well-Being, Information for patients administered radioactive iodine (I-131), Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. The next person to tell me how easy this cancer is, Im going to pull their toenails out threw their nostrils then tie them in a knot out their but hole. I don't practice medicine anymore and instead specialize in helping people like YOU who have thyroid problems, hormone imbalances, and weight loss resistance. There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. But Im not a pretty woman, rather plane, and frumpy. You can read more about my own personal health journey and why I am so passionate about what I do. After reading all the comments I feel worried about the side effects.I saw in the report that they give me I-131 15mcl for hyperthyroidism. Not to mention the radiation! Image: Shutterstock. These are the questions that I want to focus on today and hopefully answer many of the current questions that you already have. I saw 2 eye professionals. It is worth pointing out, however, that some other tissues can take up the radioactive iodine such as the beta cells in your pancreas (2) though it isnt clear how much damage exists (if any) in these other cells. If it was, then you will most likely need to start thyroid medication relatively soon (within the next days to weeks). I am 67 years old and just wonder how many years I may have either way. I can barely eat . And how can I persuade my GP to think about more than a TSH reading? Told to me by each and everyone whos never had this cancer! The thyroid is equipped with an active system or "pump" for moving iodine into its cells, where it is concentrated as iodide. Society of Nuclear Medicine & Molecular Imaging. Yup, the pain and numbness Dx CTS, that was put on the back burner for a while, as it wasnt all that troublesome at the moment. So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. Thanks look forward, Yes! If you dont have thyroid hormone at all then you risk the chance of coma and death. I expect to be back to probably about 60 to maybe 70% and that is pushing it. Since I was at the office a week ago complaining about what PTU was doing to my body I feel nervous about calling the endocrinologist again. Use disposable dishes and place them in a specially marked plastic bag for disposal. Not only can doctors NOT find a thyroid replacement that works for me due to side affects, Ive lost 70% of my hair and have to wear wig, Ive gained more weight than ever before in my life, Im constantly fatigued, in pain, moody, still have a very fast heart rate between 110-130, anxiety (like Im still hyperthyroid, but Im not.) 2 Capsules of Thyroid Adrenal Reset Complex daily https://www.restartmed.com/product/thyroid-adrenal-reset-complex/ However, all of these symptoms are also part of the menopause for which I now take HRT. Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! I have Graves Disease and lost 40 pounds. It does have effect : Radioactive dyes containing iodine of the iodide type can cause permanent thyroid damage and cancer. Results were. Now they are suggesting a second treatment at a higher dose. And if the color is hash on the . My endocrinologist said he never heard someone like that after RAI, but i asked my cousin who is a family doctor back home that you will expect that will happened to you. Also I drink 100 ounces of water plus other hydrating fluids and food per day. I would like to try some of your supplements, but not sure which ones I should be looking at. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. He just does my blood work and adjusts my medicine as needed. Its drastically changed my life. Radiation can be measured around your body and I-131 is present in your skin oil and sweat. Prior to radioactive iodine treatment, doctors create a hypothyroid state in your body. Generally, yes. Hopefully, you're now a lot closer to figuring out what color you should dye your hair. I am gaining weight! 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